O.I. Awareness Week 2025 – The #OILife Impact Report
Every May, the O.I. community comes together to educate, celebrate, and spread awareness about Osteogenesis Imperfecta — and this year, #OILife went all in.
Through virtual events, powerful content, and movement-focused experiences, we set out to spread awareness, gain acceptance, and share the awesomeness that is O.I. The results were incredible — and the impact is still being felt.
Here’s what we accomplished together during O.I. Awareness Week 2025.
💻 Website Engagement & Shareables
- #OILife Hub Page Visits: 30
- Resource Downloads: 23
Visitors downloaded and shared #OILife’s custom-designed O.I. Awareness graphics, helping boost visibility far beyond our own channels. People took action and became advocates in their own circles — mission accomplished!
📲 Social Media Reach FOR
- 10 educational and celebratory posts
- Total Shares: 217
- Follower Growth: +35
- Wishbone Day post alone received 90 shares!
- Shared the same daily facts and graphics
- #OILife Account: +17 new followers
- Tony’s Personal Account: +12 new followers
- Reels, stories, and daily facts all added to visibility
TikTok
- Tony shared content from his personal account
- Added extra awareness and engagement through short-form video
📺 YouTube Performance
- #OILife YouTube Gained: +12 subscribers
- Unique Views During the Week: 515
- Wishbone Day Livestream: Ran simultaneously on YouTube and Facebook with dozens of comments, shares, and engagement
(screenshot stats on file)
🎉 O.I. FOCUSED Community Events & Participation
We didn’t just talk about O.I. — we got moving, laughing, and connecting across the globe.
| Event | Participation |
|---|---|
| Energy Elevator Adaptive Workout | 6 attendees |
| Movement Session w/ Indian OIF | 30 participants |
| O.I. Can Dance Virtual DJ Party | 30 attendees |
From India to the U.S., people showed up, got moving, and connected with others through music and adaptive fitness.
💬 Meaningful Moments
“The most meaningful part of the week for me was the fact that so many people came and participated in movement/workout sessions and were excited to do so. It’s proving further that movement is important for the O.I. community, and we’re making it a priority by finding safe ways to move.” – Tony Jacobsen
And the love didn’t stop there:
💬 “Excellent session, Tony!”
💬 “Thank you so much, Tony!”
💬 “What a fun night!”
💬 “This is why we connect!”
#OILife continues to grow as a trusted, fun, and powerful voice in the O.I. space — and the community is embracing it more than ever before.
💪 Looking Ahead
This week proved what we already knew — movement matters. And when it’s safe, inclusive, and adaptive, it becomes a celebration of life, not just a workout.
We’re just getting started. Thank you to everyone who participated, shared, danced, downloaded, or just showed up to support.
Let’s keep living the #OILife.
