Get all the shareable elements you need to celebrate O.I. Awareness Week. The celebration of awareness for Osteogenesis Imperfecta falls near the beginning of May each year! The O.I. community also celebrates Wishbone Day every May 6th!
WHAT SHOULD I POST ON SOCIAL MEDIA FOR O.I. AWARENESS WEEK AND WISHBONE DAY?
This is the million-dollar question and luckily, the answer is right here on this page!
These pictures on this page were created by Tony Jacobsen (Founder of #OILife) and fellow O.I.er; Type 1. To find out more about #OILife and support, click here.
TEXT TO USE FOR CAPTIONS
I’ve included the text from each graphic/picture so you can copy/paste it into the caption on your social media post.
FACEBOOK PROFILE PICTURE FRAME FOR O.I. AWARENESS WEEK
Here’s a frame you can use for this year’s O.I. Awareness Week! You’ll also find the .png of this frame in the download folder for all of the pictures and graphics.
Feel free to use and post these graphics on your social media.
Please use the following hashtags and tag Tony and #OILife when appropriate;
Hashtags: #OIAwarenessWeek #OILife #UNBREAKABLE #OsteogenesisImperfecta #BrittleBonesDisease #WishboneDay
IG: @iamtonyjacobsen and @o.i.life
DOWNLOAD THE FILES
You can download all the files from Dropbox CLICK HERE.
Osteogenesis Imperfecta is characterized by bones that break with no apparent cause of stress. Bones can break when performing simple tasks like changing a diaper or a simple sneeze. Individuals may experience a few to hundreds of bone fractures throughout their life.
Osteogenesis Imperfecta is a lifelong disorder. Although many people with
O.I. have fewer fractures after puberty when growth stops, the genetic difference remains. People living with Osteogenesis Imperfecta not only break bones, but they often experience other health issues like cardiovascular problems, pulmonary complications, hearing loss, brittle teeth, spine issues, and bone deformities.
Osteogenesis Imperfecta is a rare disorder. A condition is considered rare if the number of affected people is fewer than 200,000 in the U.S. The exact number of people with O.I. in the U.S. is unknown, but the estimate is approximately 20,000 to 50,000 individuals.
Osteogenesis Imperfecta is a rare disorder. A condition is considered rare if the number of affected people is fewer than 200,000 in the U.S. The exact number of people with O.I. in the U.S. is unknown, but the estimate is approximately 20,000 to 50,000 individuals.
Osteogenesis Imperfecta exhibits a wide variation in appearance and severity.
Every individual is unique. People with the same type of O.I. may have different fracture numbers, bone deformities, and mobility.
Although there is no cure for Osteogenesis Imperfecta (yet!), treatment exists to reduce pain and improve quality of life. Plans include multidisciplinary approaches including physical therapy, occupational therapy, surgery, nutrition guidance, and complete exercise programs.
Originally, Osteogenesis Imperfecta was classified into two types: tarda and congenita.
By 1979, four types had been identified:
Type I (Mild)
Type II (Lethal)
Type III (Progressive/Severe)
Type IV (Moderate)
Now, there are approximately 18 identified types and more and more, the lines between types are being blurred.
Don’t forget to get The Ultimate Resource Guide for O.I. here.
