#OILife

Powered by The Tony Jacobsen Foundation, #OILife was built out of the need to provide the Osteogenesis Imperfecta community endless positivity, a focus on fitness, nutrition, and wellness, and a strong foundation of support and inclusion of all O.I.er’s, of all ages, around the world.

#OILife is about learning to be unbreakable… together. Through conversation and teamwork, we can now feel included, recognized and accepted, knowing we don’t have to do this alone.

Below you’ll find some great O.I. related resources as well as a way to submit your ideas.

Get on the #OILife Email List and stay up to date with new resources and event invites!

WHAT IS OSTEOGENESIS IMPERFECTA?

Osteogenesis Imperfecta (O.I.) is also known as Brittle Bone Disease. It’s a rare disorder that is characterized by fragile bones but is not exclusive to that since it is a collagen disorder. There are 18 different types of O.I. The severity levels vary depending on type and even within each type. People are thriving with O.I. throughout the world! Check out the #OILife YouTube Channel and watch the Spotlight series!

#OILife YOUTUBE CHANNEL

Video Resources for Osteogenesis Imperfecta

The #OILife YouTube channel is all about celebrating and spotlighting Osteogenesis Imperfecta lifestyle.

From livestreams (The #OILife Show), to interviews with O.I.ers, (#OILife Spotlight), to various other topics important to O.I.ers and the O.I. community, there are myriad videos available on the channel.

RESOURCES FOR O.I.

O.I. AWARENESS / WISHBONE DAY

DO YOU HAVE A RESOURCE WE SHOULD ADD?

If you have a resource you think would be good to add to the O.I. Life community, please fill in the information below. Be sure to add specific URL links to the resources you are suggesting. Thank you! Have an #UNBREAKABLE day!

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A quick intro to everything Tony...

Tony is the author of Disable Your Disability, a book about learning how to live the healthy life you deserve despite your physical limitations. He was born with Osteogenesis Imperfecta (brittle bones) and has endured 70+ fractures throughout his life. At the ripe young age of 42, he had to embrace his disability to save his life, so against all odds, pushed himself through an 8-month physical transformation that ended up being just as important mentally and emotionally.

Tony also loves music. He’s been an emcee and DJ since the mid-80’s and has DJ’d professionally since 1996 (and continues to do so!). He’s created and released independent hip hop music, and found most of his success when he and his wife, Teemaree, released 3 albums as Dynamite Jive in the early 2000’s.

In addition to all this, Tony has worked professionally in the television/film industry since 2001, and created his own company, Egg Sandwich Media, to work as a one-man-production-band; wearing the hat of Producer all the way to Video Editor.

He currently lives in Detroit, MI with his wife and they enjoy their empty-nester life in the desert.

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