Learning to be #UNBREAKABLE... together!
Powered by The Tony Jacobsen Foundation, #OILife was built out of the need to provide the Osteogenesis Imperfecta community endless positivity, a focus on fitness, nutrition, and wellness, and a strong foundation of support and inclusion of all O.I.er’s, of all ages, around the world.
#OILife is about learning to be unbreakable… together. Through conversation and teamwork, we can now feel included, recognized and accepted, knowing we don’t have to do this alone.
Below you’ll find some great O.I. related resources as well as a way to submit your ideas.
GET ON THE EMAIL LIST AND STAY UP TO DATE WITH NEW RESOURCES AND EVENT INVITES!
What is Osteogenesis Imperfecta?
Osteogenesis Imperfecta (O.I.) is also known as Brittle Bone Disease. It’s a rare disorder that is characterized by fragile bones but is not exclusive to that since it is a collagen disorder. There are 18 different types of O.I. The severity levels vary depending on type and even within each type. O.I. does create hardships and can be challenging to navigate, however, people are thriving with O.I. throughout the world!
Learn more about O.I. and watch interviews on the #OILife channel!
The #OILife Channel
Video resources for Osteogenesis Imperfecta!
The #OILife YouTube channel is all about celebrating and spotlighting Osteogenesis Imperfecta lifestyle.
From livestreams (The #OILife Show), to interviews with O.I.ers, (#OILife Spotlight), to various other topics important to O.I.ers and the O.I. community, there are myriad videos available on the channel.
Join an #OILife GROUP Meeting!
#OILife GROUP meetings were started to fill a gap in social gatherings for O.I.ers. Each meeting will focus on a new topic that is important to the quality of life for us as well as the community.
It's a powerful time and opportunity for O.I.ers to jump in a zoom room - which means you can join from anywhere in the world - and chat directly with each other.
Resources for Osteogenesis Imperfecta.
Finding quality and abundant resources for Osteogenesis Imperfecta, for both people with the disorder as well as those who care for them, is a difficult process. Many organizations are exclusive with their information. #OILife is focused on bringing all resources together in one place to make the process easier. Below you'll find an ever growing list of resources for those who live with Osteogenesis Imperfecta. If you have a resource that should be included, please fill out the form and let us know.
Recognition for Tony and #OILife
"Thank you, Tony, for the amazing work you do for our OI community. The more I see the more I appreciate your professionalism, your insights, your consistency in driving open connections across everyone, your intention to support others and you as a unique, inspirational and energizing friend in our OI community!"
D.M.
O.I. community leader in Europe
"...[Tony] shared great insight about health and fitness with OI Foundation conference participants, and was very encouraging to attendees of all ages, physical abilities and backgrounds. Tony naturally connects to individuals to form friendships and expand professional networks. He is very motivating, and shares positive energy with everyone around him. I see Tony as a leader in the OI community online and in-person."
Petra
Former O.I.F. Health Educator
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