Welcome to #OILife! Born from an undeniable urge to uplift every single person touched by Osteogenesis Imperfecta, we're all about radiating positivity, championing and pioneering fitness, nutrition, and overall wellness.
Across every age and every corner of the globe, we're laying down an unshakable foundation of support. Every O.I. warrior, young or old, is part of this incredible family.
Here's the real heart of #OILife: together, we're forging a spirit that's downright #UNBREAKABLE. By leaning on one another, sharing stories, and joining forces, we're ensuring every voice is heard.
Remember, in this journey, you're never alone.
Dive in below! We've packed in some powerful O.I. resources for you. Oh, and if you've got something to share or suggest, we're all ears.
Osteogenesis Imperfecta (O.I.) is also known as Brittle Bone Disease. It’s a rare disorder that is characterized by fragile bones but is not exclusive to that since it is a collagen disorder. There are currently 18 known types of O.I. The severity levels vary depending on type and even within each type. O.I. does create hardships and can be challenging to navigate, however, people are thriving with O.I. throughout the world!
Learn more about O.I. and watch interviews on the #OILife channel!
#OILife GROUP meetings were started to fill a gap in social gatherings for O.I.ers. Each meeting will focus on a new topic that is important to the quality of life for us as well as the community.
It's a powerful time and opportunity for O.I.ers to jump in a zoom room - which means you can join from anywhere in the world - and chat directly with each other.
Meetings for 2023 are held on the 3rd Wednesday of each month at 7pm EST / 4pm PST.
Once you attend a meeting, you'll be given the opportunity to join the private online #OILife GROUP Community to stay connected with everyone!
Video resources for Osteogenesis Imperfecta!
The #OILife YouTube channel is all about celebrating and spotlighting Osteogenesis Imperfecta lifestyle.
From livestreams (The #OILife Show), to interviews with O.I.ers, (#OILife Spotlight), to various other topics important to O.I.ers and the O.I. community, there are myriad videos available on the channel.
Finding quality and abundant resources for Osteogenesis Imperfecta, for both people with the disorder as well as those who care for them, is a difficult process. Many organizations are exclusive with their information. #OILife is focused on bringing all resources together in one place to make the process easier. Below you'll find an ever growing list of resources for those who live with Osteogenesis Imperfecta.
If you have a resource that should be included, please click the button at the bottom of the list and fill out the form.
O.I. community leader in Europe
Former O.I.F. Health Educator
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Disclaimer: As with any exercise or nutrition program, consult with your physician before trying any workouts or making any changes in your diet. All of the information on this website and any statements made by Tony Jacobsen are for informational purposes only. You understand and agree that Tony is acting as a NASM Certified Personal Trainer and not a licensed physician. You agree to use common sense when exercising and eating and agree to consult a licensed physician if you are experiencing any pain or discomfort. Tony Jacobsen, and all parties represented on this website, will not be held responsible for any injury or illness stemming from taking the advice or using any products that are on this website.